Brain Injury Resources



		*Helping persons with TBI put their lives back together since 1983.*
		Brain Injury Resources
		California Resource Directory Betty Clooney Foundation specializes in California resources for Brain Injury. • California Resource Directory Other Resources and Other Sites Listed below are numerous websites grouped by the categories listed. This is not an exhaustive list of all the information available on the web that is relevant to Brain Injury issues, but rather a snapshot of some we have found to be useful. These sites are listed as suggestions only, and do not imply endorsement of the opinions or information included on the sites. Many of these sites have resources pages of their own - be sure to check them out! • Blogs • Brain Injury Specific Sites • General Disability Information Sites • Legal Information • Links to General Brain / Neurological Info Sites • Websites for TBI Survivors, Families, & Caregivers Blogs The Brain Injury News and Information Blog www.braininjury.blogs.com Dedicated to providing the latest news on brain injury and is designed to be a valuable resource for professionals, persons who have sustained a brain injury and family members. New developments in medicine, legislation, law, sports, events, meetings and injury prevention are reported on a daily basis. Brain Injury Specific Sites Brain Injury Association of America (BIAA) http://www.biausa.org Family Helpline: 1-800-444-6443 This site includes information about TBI as it relates to the following: prevention, advocacy, education, rehabilitation, and research. It is a helpful site for survivors, family members, and professionals who support the TBI population. Links to state BIA Chapters are also listed. California Department of Mental Health http://www.dmh.ca.gov/TBI/default.asp Center for Neuro Skills (CNS) TBI Resource Guide http://www.neuroskills.com The "News and Education" section offers current TBI news, the "Research" menu provides links to information about brain injury and MTBI (mild traumatic brain injury/concussion), and a glossary and pharmacology guide are included in "Tools" to help in understanding medical or rehabilitation records. Dana Alliance and the Dana Foundation http://www.dana.org This site provides extensive information about the brain and its disorders, and provides access to a variety of free publications (see the "Select Publication" drop-down menu). Click on "Brain Kids Online" to access activities for younger children, puzzles, and lesson plan suggestions. Lash and Associates Publishing/Training http://www.lapublishing.com Voice: (919) 562-0015 This site provides information and materials written by and for teachers, therapists, and parents. Monthly specials are featured, offering discounts on selected publications. Click on "Resource Links" for an extensive list of informative websites. Mild Traumatic Brain Injury Course Modules http://nanonline.org This site provides a variety of TBI education modules, primarily involving Mild TBI (MTBI) and concussion, including MTBI terminology, neuropsychological testing considerations in MTBI, diagnostic challenges in MTBI, and sports and MTBI. National Database of Educational Resources on Traumatic Brain Injury http://www.braininjuryresearch.org Find bibliographic and order information for videotapes, audiotapes, and unpublished printed materials on TBI. Some printed materials are available as downloadable files. This database is a collaborative effort between the National Institute on Disability and Rehabilitation Research, United States Department of Education and the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. National Institutes of Neurological Disorders and Stroke http://www.ninds.nih.gov From the "Disorder Quick Links" drop-down menu, click on Traumatic Brain Injury. National Resource Center for Traumatic Brain Injury http://www.neuro.pmr.vcu.edu Visit this site for information on current TBI research, prevention, and related information. Research & Training Center on Community Integration of Individuals with TBI http://www.mssm.edu/tbinet/alt/index.html Another source for information on TBI; includes a searchable database, available publications, frequently asked questions about TBI, and more links. Under the "RTC Resources" menu, check out the article on TBI in Schoolchildren. Traumatic Brain Injury Services of California (TBISCA) http://www.tbisca.org The Traumatic Brain Injury National Data Center (TBINDC) http://www.tbindc.org The Traumatic Brain Injury National Data Center (TBINDC) at Kessler Medical Rehabilitation Research and Education Center is the coordinating center for the research and dissemination efforts of the Traumatic Brain Injury Model Systems (TBIMS) program funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The TBI Model Systems consist of 16 comprehensive systems of care distributed throughout the United States that conduct innovative research and provide “model” care to persons who experience traumatic brain injury. The TBIMS program seeks to improve the lives of persons who experience traumatic brain injury, their families and their communities by creating and disseminating new knowledge about the course, treatment and outcomes relating to their condition. The Margot Anderson Foundation http://www.brainrestoration.com Dedicated to creating, supporting and accelerating massive research into safe and effective means of restoration of brain functions back to top General Disability Information Sites Assistive Technology in the Individual Education Plan http://www.nls.org/atiep.htm This document outlines considerations in the selection and implementation of assistive technology (AT) within the Individual Education Plan (IEP), the roles of IEP team members, sample IEP goals, and the use of AT in instruction of students with mild disabilities. Assistive Technology Training Online http://atto.buffalo.edu Produced by the State University of New York at Buffalo, this site provides assistive technology basics, tutorials, and resources. CDC TBI Publications http://www.cdc.gov/ncipc/tbi/TBI_Publications.htm Centers for Disease Control and Prevention (CDC) http://www.cdc.gov The CDC's site provides information on the epidemiology of TBI, as well as a link to view or order their publication "Facts about Concussion and Brain Injury," a summary of mild brain injury with sections relevant to concussion in children. Click on Search and type in traumatic brain injury to link to this information. Council for Exceptional Children http://www.cec.sped.org CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice. Find out about local CEC chapters. Disability Resources on the Internet http://www.disabilityresources.org/BRAIN.html The Disability Resources Monthly (a newsletter reviewing resources for independent living) has compiled this list of websites about brain injury and related subjects. ERIC Clearing House on Disabilities and Gifted Education http://www.ericec.org 1-800-328-0272 (V/TTY) ERIC is an acronym for the Educational Resources Information Center. The ERIC Clearinghouse on Disabilities and Gifted Education (ERIC EC) is one of 16 federally funded clearinghouses in the ERIC system, a nationwide information network sponsored by the U.S. Department of Education, Office of Educational Research and Improvement (OERI), and administered by the National Library of Education (NLE). ERIC EC gathers and disseminates professional literature, information, and resources on the education and development of individuals of all ages who have disabilities and/or who are gifted. National Center for Education in Maternal and Child Health Clearinghouse (NCEMCH) http://www.ncemch.org This site is a federally-supported comprehensive resource center for maternal and child health information, including information on children and youth with special health care needs, youth and mental health, and emergency medical services for children. NCEMCH provides access to data, research findings, consensus reports, and other products. The Web site enables key word searching and contains published bibliographies. National Information Center for Children and Youth with Disabilities (NICHCY) http://www.nichcy.org Voice/TTY: 1-800-695-0285 A very informative website including information on many disabilities and links to other disability resources on the web. For information on TBI, go to publications/ fact sheets/ traumatic brain injury for a concise summary of TBI as it affects children and youth. National Pediatric Trauma Registry (NPTR) http://www.nemc.org/rehab/nptrhome.htm Voice: (617) 636-5031 The National Pediatric Trauma Registry was established in 1985 to study the etiology of pediatric trauma and its consequences. Solutions: Assistive Technology for People with Hidden Disabilities http://www.ndipat.org/products/solutions/sol.htm This site provides principles and products for supporting people with primarily cognitive difficulties. back to top Legal Information Brain Damage Attorneys http://www.braindamageattorneys.com Description: Find a brain injury attorney that specializes in brain injury or brain damage cases. Cases including the invisible injury, moderate to severe TBI, concussion in ports and organic brain injury/post traumatic stress disorder. Brain Injury Lawyer http://www.headlaw.com Specializing in Personal Injury Litigation with Emphasis on Serious Brain Injury. Retaining your lawyer may be the single most important decision for brain injury survivors and their families. Neurotrauma Law Nexus http://www.neurolaw.com Great resource for families and professionals. The Brain Injury Information Page http://www.tbilaw.com Provides information about brain injury, concussion, coma and head injury, for TBI survivors, spouses and caregivers. This page features articles, information and graphics about traumatic brain injury. The Consumer Law Page http://www.consumerlawpage.com/article/trabrain.shtml Article discusses brain injury causes, outcomes, and provides definition of terms. Where to Turn: Your Guide to Federal Disability Policies and Programs http://www.biausa.org/Pages/where_to_turn.html This website provides descriptions of government programs and legislation, and includes contact information for most departments and agencies. Topic include the Americans with Disabilities Act, Social Security, Medicare, Temporary Assistance for Needy Families, Housing Assistance Options, Special Education, Employment, Voting Rights, and Transportation and Travel. The information may also be read and printed with Adobe Acrobat Reader. WrightsLaw http://www.wrightslaw.com Parents, advocates, educators, and attorneys visit this site for accurate, up-to-date information about advocacy for children with disabilities. Victimization of Persons with Traumatic Brain Injury or Other Disabilities http://www.cdc.gov/ncipc/tbi/FactSheets/VictimizationTBI_FactSheet4Professionals.htm back to top Links to General Brain/Neurological Info Sites Brain Center http://www.braincenter.org Your doorway to information regarding acquired brain injury, including stroke, trauma, anoxia, infection, and tumors. Brain Index http://www.brainindex.com Provides links to other informative sites on the web that pertain to brain injury. Brain Injury News and Information Blog Dedicated to providing the latest news on brain injury and is designed to be a valuable resource for professionals, persons who have sustained a brain injury and family members. New developments in medicine, legislation, law, sports, events, meetings and injury prevention are reported on a daily basis. http://www.braininjury.blogs.com Medical Terminology Web Sites Check out these sites for dictionaries of medical terms. http://cancerweb.ncl.ac.uk/omd http://www.medicinenet.com http://www.intelihealth.com http://www.medic8.com Neuroscience For Kids http://faculty.washington.edu/chudler/introb.html This fun, educational site is maintained by Eric H. Chudler, Ph.D., and has been created for all students and teachers who would like to learn more about the nervous system. Enjoy the activities and experiments on your way to learning more about the brain and spinal cord. TBI and Neuropsychology http://www.tbidoc.com A Neuropsychology Home Page devoted to the understanding of brain injury, and the neuropsychologist's role in identifying, proving and treating brain injury. The Brain Connection http://www.brainconnection.com Another fun site with lots of information on brain function as it relates to how we learn. Sign up for the weekly newsletter. The Neurotrauma Registry http://www.neure.com An inclusive national and international resource list for those with acquired brain injury, spinal cord injury, or who have sustained other complex neurotrauma. Traumatic Brain Injury Info http://www.tbiinfo.com Basic information about brain injury. Virtual Hospital - The Human Brain http://www.vh.org This site provides virtual brain dissection with photographs of the nervous system. back to top Websites for TBI Survivors, Families, & Caregivers Acute Brain Injury - A Guide for Family and Friends http://www.vh.org This guide is featured on the Iowa Virtual Hospital site under the link for Common Problems in Adults/Head Trauma. The medical aspects of brain injury and the resulting effects are explained in easy-to-understand language. Brain Injury Society http://www.bisociety.or Serving brain injured individuals and their families. Caregivers http://www.caregiver.com Topic specific newsletters, on line discussion lists, back issue articles of Today's Caregiver magazine and chat rooms. Centers for Disease Control and Prevention http://cdc.gov and their SafeUSA section. Family Village Home Page http://www.familyvillage.wisc.edu/index.html A massive site for disability-related information. Any family of a child with special needs should know about this web site. It includes a searchable library of resources related to specific disabilities, bulletin boards, chat rooms, parent support links, and information about adaptive resources. Family Voices http://www.familyvoices.org Family Voices is a national grassroots network of families and others who advocate on behalf of children with special health care needs. Objectives include bringing the family perspective to policy discussions and decisions, and providing a clearinghouse for information and education about ways to assure and improve health care for children. Find links to state Family Voices chapters on this site. Head Injury http://www.headinjury.com A place where visitors can get information, join a discussion group, build advocacy skills and self-care skills. Jodi House - Santa Barbara County http://www.jodihouse.org Supportive services for people with acquired brain injuries and their families Legacy Health http://www.legacyhealth.org Caregiver information and support. National Alliance for Caregiving http://www.caregiving.org Tips for caregiving. National Association of State Head Injury Administrators http://nashia.org They manage the TBI Technical Assistance Center, http://www.tbitac.org National Family Caregivers Association http://www.thefamilycaregiver.org/ Committed to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers. National Resource Directory (NRD) http://www.nationalresourcedirectory.gov National Resource Directory for Wounded, Ill and injured Service Members, Veterans, their Families and those who support them Parent Pals http://www.parentpals.com Click on the "Special Education" link to find information specifically about brain injury. TBI Fact Sheet http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1052 The Family Caregiver Alliance works closely with the California Department of Mental Health to coordinate program development, training, research, publications and services for the statewide network of 11 nonprofit Caregiver Resource Centers for families of adults with chronic health conditions. TBI Guide http://www.tbiguide.com This guide explains traumatic brain injury in clear, easy-to-read terms. TBI Net http://www.tbinet.org/raf This is a small group to assist you in your time of need. The Brain Power Project http://wwwthebrainpowerproject.org Cerebral Cavernous Malformation (CCM) is a type of brain injury. This organization has good resources, information and ongoing research into this type of malformation. The Looking Glass http://www.lookingglass.org (TLG) is a nationally recognized non-profit agency and first National Resource Center for Parents with Disabilities.They provide direct services, training, materials and research concerning families in which a child, parent or grandparent has a disability or medical issue. Trauma Cerebral: Una Guía para Familiares y Amigos http://www.vh.org The site above has been translated into Spanish and can be viewed and printed from Adobe Acrobat Reader. The Brain Injury Information NETwork http://www.tbinet.org On line support groups for brain injury, stroke and other medical related issues and for caregivers. Waiting.com http://www.waiting.com This website was designed for TBI survivors, their families, friends, and caregivers, including information about "waiting" for someone to awake from a coma. There are also personal stories and links to related information about brain injury. back to top
		Betty Clooney Foundation – Serving Persons with Traumatic Brain Injury TBI 4429 Village Road, Long Beach, CA 90808, tel: (562) 938-9005 about tbi \| our services \| donate \| resources \| take action \| groups \| in the news \| newsletters \| sitemap \| terms \| home © 2005-2008 Betty Clooney Foundation. All Rights Reserved. Graphics by S'Pacific Image. Site by ReaLife WebDesigns.